Clinician's Tools
Navigating the hypermobility landscape as a clinician can feel overwhelming. This page brings together the most useful starting points that are practical and vetted by our clinical team.
Part 1 — Connecting With the Profession
How do I find other professionals with experience in hypermobility?
Start with the EDS Society CORE Network.
The Ehlers-Danlos Society CORE Network of Excellence is an international programme that now spans 37+ centres across 11 countries. Clinicians and services within this network have committed to evidence-based diagnostic criteria, patient-centred care, peer education, and research participation.
Look for who is publishing and presenting.
Clinicians who present at relevant conferences — including the Ehlers-Danlos Society annual conference, Dysautonomia International’s annual conference, or allied professional events — or who publish in this space are often willing connectors.
Join professional communities online.
Targeted professional Facebook groups (links below) and networking communities focused on hypermobility, dysautonomia, and mast cell disorders have become genuinely useful spaces for peer consultation, referral building, and keeping up with clinical developments. The Hypermobility Special Interest Group on LinkedIn is a good starting point.
Build your local referral map.
For most patients, the most impactful team is the one they can actually access. Consider proactively developing informal referral relationships with GPs, rheumatologists, cardiologists, pelvic health physiotherapists, pain specialists, clinical psychologists, and dietitians in your region. Even two or three trusted colleagues across disciplines can transform what you are able to offer.
Join our professional community.
We are building a growing network of clinicians working in this space — across disciplines and across geography. You are welcome to join our newsletter at The Hypermobility Project.
Clinician Resource Directory
The following resources have been curated and categorised for clinical relevance. All links are intended for use by healthcare practitioners working with hypermobile patients.
Clinician Directories & Networks
Starting points for finding colleagues with hypermobility experience and building referral relationships.
EDS Society Healthcare Professionals Directory
A global, searchable directory of providers who work with EDS and HSD. Useful for identifying potential referral partners or locating colleagues in your region.
EDS Society CORE Network of Excellence
An international programme of 37+ designated centres across 11 countries committed to evidence-based EDS and HSD care, peer education, and research participation.
POTS Foundation Clinician Directory (Australia)
An Australian directory of practitioners with experience in POTS and dysautonomia — useful for building local referral pathways for autonomic presentations.
LinkedIn: Hypermobility Special Interest Group
A professional LinkedIn group for clinicians interested in hypermobility — a practical space for peer connection, resource sharing, and professional networking.
EDS ECHO Multidisciplinary Team Practice Australasia
A tele-mentoring programme designed to support Australasian clinicians to build capacity in EDS and HSD management within MDT frameworks.
Connective Tissue Disorders Network Australia (CTDNA)
An Australian network supporting those affected by connective tissue disorders, with resources relevant to clinicians seeking to understand the local landscape of care.
The Mast Cell Disease Society (TMS)
A trusted resource for clinicians and patients navigating mast cell activation syndrome, mastocytosis, and related conditions. TMS offers expert-led educational courses, a TeleECHO programme for healthcare professionals, clinical resources, and a Medical Advisory Board that includes leading specialists in the field.
Professional Development & Communities
Platforms, communities, and tools supporting ongoing clinician development, peer learning, and multi-disciplinary connection in hypermobility.
Hypermobility Health Professionals Worldwide — Facebook Group
A Facebook group for health professionals working with hypermobility conditions worldwide.
Hypermobility Health Professionals Network (Australia) — Facebook Group
The Australian counterpart to the international group above — a professional community for clinicians based in Australia managing patients with hEDS/HSD and related conditions.
Hypermobility for Australian Allied Health — Facebook Group
A Facebook group specifically for Australian allied health professionals working in the hypermobility space.
Part 2 — Clinical Knowledge & Decision-Making
Research & Evidence Base
Key recent research articles and clinical reviews to support evidence-informed practice in hypermobility.
Russek et al. 2023 — Upper Cervical Instability Research (Frontiers in Medicine, 2023)
An international expert consensus paper examining the presentation and physical therapy management of upper cervical instability in symptomatic generalised joint hypermobility — co-authored by Sharon Hennessey and colleagues across the US, UK, and Australia.
AGA Clinical Practice Update: GI Manifestations & Autonomic/Immune Dysfunction in hEDS
A 2025 expert review from the American Gastroenterological Association on GI presentations in hypermobile EDS, covering autonomic dysfunction and immune involvement — essential reading for clinicians managing complex multisystem patients.
Postural Orthostatic Tachycardia Syndrome: A State-of-the-Art Review (2026)
A comprehensive, current review of POTS covering pathophysiology, diagnostic criteria, and treatment approaches — directly applicable to clinical management of dysautonomia in hypermobile patients.
Clinical Tools & Questionnaires
Clinically useful tools to support assessment and monitoring in hypermobility-related presentations.
EDS Society GP Toolkit
A practical clinical resource developed by the EDS Society to support GPs and generalists in identifying, assessing, and managing EDS and HSD presentations.
The Spider Questionnaire (HSD/hEDS Multisystemic Impact Scale)
A freely downloadable, validated questionnaire developed by Professor Jane Simmonds and colleagues. It assesses symptom impact across eight domains — neuromusculoskeletal, pain, fatigue, gastrointestinal, cardiac dysautonomia, urogenital, anxiety, and depression — and maps results onto a visual spider’s web. Available in PDF and Excel (with automated scoring) formats. Validated for ages 13–65. Useful for initial profiling, treatment prioritisation, and monitoring outcomes across a multisystem caseload.
POTS Active Stand Test (AST) — AusPOTS
A clear, downloadable guide to performing and interpreting the Active Stand Test for POTS — a bedside screening tool requiring no specialist equipment.
Malmo POTS Questionnaire (MALMO-MAPS)
A symptom questionnaire for POTS, useful for initial assessment, monitoring treatment response, and supporting clinical reasoning in dysautonomia presentations.
Mast Cell Mediator Release Syndrome Questionnaire
A structured symptom questionnaire to aid clinical identification of mast cell activation patterns — particularly useful in multisystem presentations alongside HSD.
Gene Review: Hypermobile EDS (GeneReviews, NCBI)
A comprehensive peer-reviewed clinical summary of hypermobile EDS from GeneReviews — covers diagnosis, management, and genetic counselling considerations.
myDNA — Pharmacogenomics for Clinicians
A pharmacogenomics platform offering clinically relevant genetic insights into medication metabolism — useful context for clinicians managing hypermobile patients with complex polypharmacy.
SPAN Toolkit — Suicide Prevention for Autistic & Neurodivergent Individuals
A neurodiversity-affirming clinical toolkit for suicide prevention — relevant given the high co-occurrence of autism and neurodivergence in hypermobile patient populations.
Clinical Protocols & Practice Tools
Practical clinical documents, protocols, and adjunct tools that can be used directly in practice or shared with patients and treating teams.
Perioperative Management Guide — EDS, POTS & MCAS (Lam & Hennessey)
A co-authored perioperative guide for patients with hypermobility, POTS, and MCAS — an essential resource for surgical teams, anaesthetists, and managing clinicians preparing patients for procedures.
A GP Guide to hEDS (Australian Doctor)
A practical clinical guide written for Australian GPs — useful for sharing with referring practitioners or as a foundation for GP education within your local network.
Part 3 — Further Clinician Education & Resources
The following resources have been developed specifically for health professionals who want to work more confidently and effectively with hypermobile patients.
The Hypermobility Project — Clinician Education Platform
Sharon Hennessey’s clinician education platform offering courses and training programmes developed specifically for health professionals working with hypermobility, hEDS/HSD, POTS, and MCAS. Covers screening, differential diagnosis, and multisystem clinical management across disciplines.
The Hypermobility Project — Diagnosing Hypermobility Resource Pack
A clinical resource pack covering the diagnosis and screening of hypermobility spectrum disorders — structured, practice-ready tools to support accurate identification of hEDS and HSD in clinical caseloads. A practical addition to the toolkit of any clinician working in this space.
Part 4 — Patient-Facing Resources
The following resources are designed for patients, carers, and the general public. They are included here as referral destinations — useful when patients require information outside of the clinical consultation.
Not Just Bendy — Blog
The patient and carer-facing platform associated with The Hypermobility Project. The blog covers hypermobility, hEDS/HSD, POTS, MCAS, and related topics in accessible, evidence-informed language. A useful referral destination for patients who want to deepen their understanding between appointments.
Not Just Bendy — Resource Links
A curated links page on Not Just Bendy collating key external resources for patients and carers navigating hypermobility conditions. Covers organisations, support communities, and further reading — a practical signposting tool to share directly with patients.
Join Us
Join The Hypermobility Project to become part of a movement that is rewriting the story of hypermobility care.
Together, we can end dismissal, reduce diagnostic delays, and transform patient outcomes.
Advancing care.
Empowering clinicians.
Disclaimer: The resources on this site are designed for education and general guidance. They are not a replacement for personalised medical advice. If you are seeking care, please consult a qualified medical professional for advice tailored to your situation.
Health professionals trained through this site are responsible for their own clinical decisions and professional conduct.